Danielle Pagliaro, Senior ARC Specialist in our New York office asked Fareportal to help support the National Hemophilia Foundation.
Tell us about the National Hemophilia Foundation
The National Hemophilia Foundation is dedicated to finding better treatments and cures for inheritable bleeding disorders and to prevent the complications of these medical disorders through education, advocacy, and research. Its programs and initiatives are made possible through the generosity of individuals, corporations, and foundations, as well as through a cooperative agreement with the Center for Disease Control and Prevention (CDC).
Why did you choose this charity?
This is a very important cause for me because my nephew and godson, Robby, has hemophilia. He was born with this medical condition and it has been especially hard seeing him grow up with it. It is a serious matter every time Robby falls, gets hurt, or even takes a trip to the dentist, because any of these potentially fatal situations may result in Robby needing shots or medications.
Besides the threat of bleeding to death, people with hemophilia suffer from joint pain, something I have seen with Robby’s Uncle Ernest who also lives with hemophilia. I am happy to report that thanks to generous donations, research, and medication, hemophilia has come a long way. I do see a safer, less painful future for my nephew and all those who suffer from the condition.
How long have you been involved with the National Hemophilia Foundation? What sorts of activities are you involved in?
I have been involved with the NHF for over seven years. I try to get people to join our team — Team Robby — to walk with us and to help with our fundraiser for the Unite for Bleeding Disorders Walk.
How could people get involved wit h The Valerie Fund? What sorts of opportunities do they have?
There are many ways to get involved with NHF. While donations are always appreciated to help advance research, people can also visit the National Hemophilia Foundation at www.hemophilia.org to look for other ways to get involved. The foundation is always looking for more volunteers and people can get involved by becoming a member of a local walk team, part of NHF’s National Hemophilia Walk program. People can also donate a car or other vehicle through the NHF’s Vehicle Donation Program.